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De roupas a ensaios clínicos: Fundador da Lululemon se compromete a doar US$ 100 milhões para o encontro da cura da FSHD

Chip Wilson sofre de uma forma rara de distrofia muscular e busca inovadores científicos para encontrar a cura para ele e para os outros

VANCOUVER, British Columbia, March 09, 2022 (GLOBE NEWSWIRE) — Os empreendedores mais bem-sucedidos do mundo geralmente estão dispostos a compartilhar como as lições aprendidas e a resiliência moldaram seu senso de negócios, mas poucos transcendem o sucesso e criam um caminho otimista para superar o maior desafio – sua própria saúde.

Revelando sua própria história, Wilson, que foi diagnosticado com distrofia muscular facioescapulo-umeral tipo 2 (FSHD2) aos 32 anos, divulgou que se comprometeu a doar US$ 100 milhões e criou um novo empreendimento, o Solve FSHD, para encontrar a cura para da FSHD até 2027, com foco na causa genética subjacente ou melhoria da função e do crescimento muscular.

“Solve FSHD irá acelerar o desenvolvimento subfinanciado de drogas e terapias para interromper a degeneração e aumentar a força muscular, e melhorar a qualidade de vida de quem vive com essa doença”, disse Wilson, que parou de jogar squash há 10 anos por não poder mais levantar a raquete acima da cabeça.

Aos 67 anos, o empresário em série e pai de cinco meninos disse que a parte superior do seu corpo está “muito debilitada”. Suas pernas perderam substancialmente tecido muscular e Wilson prevê que em um futuro não muito distante ele precisará de usar cadeira de rodas.

“Eu ainda consigo andar, mas preciso me concentrar muito para não tropeçar e cair. Sei que um dia não conseguirei mais andar”, disse o empresário e filantropo de negócios canadense. Atualmente não há cura para a FSHD, um distúrbio genético que apresenta sintomas, gravidade e progressão diversas. De acordo com a Mayo Clinic, a fraqueza muscular começa geralmente na face, quadril e ombros. O início geralmente ocorre na adolescência, mas pode começar até na infância.

“É uma das distrofias musculares adultas mais prevalentes. Os investimentos da Resolve FSHD agora para ajudar a validar biomarcadores e desenvolver novas terapias pagarão dividendos mais tarde para qualquer empresa ou pesquisador que busque melhores terapias para FSHD. Esses investimentos são a base para os futuros ensaios clínicos e servem como uma semente para mais financiamento e investimento”, disse o Dr. Jeffrey Statland, Professor Assistente de Neurologia da University of Kansas Medical Center. O Dr. Statland fez treinamento clínico e de pesquisas de doenças neuromusculares, com focado principalmente na FSHD.

“Solve FSHD irá apoiar projetos que normalmente não receberiam financiamento, incluindo gargalos na pipeline e, assim, acelerar o desenvolvimento de ensaios clínicos e novas terapias. Podemos avançar rapidamente e buscar vários projetos simultaneamente ”, disse Wilson.

Cientistas, empresas de biotecnologia e biofármacos, especialistas em degeneração muscular e outros pesquisadores que trabalham em campos de distrofia muscular semelhantes estão convidados a entrar em contato com a Solve FSHD. A Solve FSHD quer financiar ou investir em potenciais parceiros de pesquisa, empresas e clínicos interessados em avançar pesquisas e ensaios clínicos afins.

A Solve FSHD também quer entrar em contato com pessoas que tenham ou suspeitam que tenham FSHD, que queiram se voluntariar para participar de um registro de contato para ensaios clínicos.

“A FSHD muda a vida das pessoas e sei que meu futuro será bem difícil”, disse Wilson. “Prefiro não ser somente um observador e sim utilizar o meu tempo e dinheiro para ajudar esta causa tão importante para mim e para tantas pessoas. E ainda levar esperança para as pessoas afetadas pela FSHD.”

Sobre a Solve FSHD
A Solve FSHD está financiando atividades inovadoras de pesquisa e desenvolvimento de biotecnologia e biofármacos que aceleram novos tratamentos para distrofia muscular facioscapulo-umeral (FSHD). O programa é totalmente financiado e criado pelo empresário e filantropo canadense Chip Wilson. O fundador da Lululemon Athletica inc., empresa de vestuário atlético inspirado na yoga tem FSHD há três décadas. Ele investiu US$ 100 milhões do seu próprio dinheiro para criar o Solve FSHD para financiar projetos que se encaixam na missão da organização: acelerar a pesquisa de novas terapias e encontrar uma cura para a doença até 2027.

Anúncios futuros de financiamento de subsídios serão publicados no site da Solve FSHD – https://solvefshd.com/

Para empresas em estágio inicial, entre em contato com a Solve FSHD em [email protected].

Quem tiver FSHD e quiser obter mais informações sobre ensaios clínicos ou ser incluído no registro de FSHD, consulte o site da Solve FSHD – https://solvefshd.com/

Para perguntas da mídia ou para solicitar uma entrevista da mídia, contate:
Kamran Shaikh, Diretor de Contas
PR Associates
[email protected]
778-846-5406

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Customertimes Announces The Give Back to Ukraine Fund

NEW YORK, March 9, 2022 /PRNewswire/ — Customertimes announces the launch of The Give Back to Ukraine Fund, a humanitarian initiative to support those who have been directly impacted by the war.

This independent account will be governed by the Customertimes executive board, and 100% of the contributions will be used to support employee volunteer efforts on the ground and provide housing, medicine, clothing, and food for our Ukrainian team.

Since its launch March 3, 2022, The Give Back to Ukraine Fund has raised more than $95,000 USD. Additionally, the C-level staff at Customertimes has collectively agreed to donate their own salaries for the month of March to these rescue efforts.

“I would like to personally thank our colleagues and partners for their contribution to The Give Back to Ukraine Fund,” says Dmitry Sidnev, CEO and Co-founder of Customertimes.

“The funds are helping our colleagues and their families who are volunteering in Ukraine, Poland, Hungary, and Romania to provide food, water, clothing, relocation, housing, transportation, and medical assistance to those that need it most. We are also supporting our team directly, ensuring everyone is safe and has access to food, shelter, and supplies.”

Contributions can be made through Square or via wire transfer, and the company will provide an independent report of every dollar that is spent through the fund. Results will also be published on the company website for complete transparency.

To learn more:

About Customertimes

Customertimes Corp. is a global consulting and software firm dedicated to making the top IT technologies accessible to customers. With more than 4000 projects completed and 1600+ highly skilled experts, our solutions are engineered to help clients realize true business transformation and achieve maximum value from their technology investments. An early entrant into the Salesforce consulting and implementation space in Eastern Europe and an award-winning product development organization, Customertimes Corp. currently has headquarters in New York City, along with regional offices in London, Paris, Toronto, Kyiv, Poznan, Riga, and Podgorica. For more information, visit www.customertimes.com.

Media Contact:
Meriel Sikora
Customertimes
212-520-0059
meriel.sikora@customertimes.com

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La solution FusionPower6000 de Huawei remporte le prix du produit d’innovation au Data Centre World 2022

LONDRES, 9 mars 2022 /PRNewswire/ — La solution Smart Converged FusionPower6000 de Huawei, un système d’alimentation et de distribution de pointe, a remporté le prix DCW dans la catégorie Produit d’innovation de l’année lors du Data Centre World 2022 qui s’est récemment terminé à Londres.https://mma.prnewswire.com/media/1761647/image_5003324_11238039.jpg

Les Data Centre World Awards, décernés chaque année, sont conçus pour reconnaître et récompenser les innovations et les réalisations dans le secteur mondial des centres de données. Le fait que Huawei ait remporté le prix de l’innovation cette année montre que l’industrie reconnaît FusionPower6000 pour sa haute densité et son efficacité, sa livraison simplifiée, ainsi que sa sécurité et sa fiabilité accrues.

Avec un modèle disparate du système d’alimentation électrique, la plupart des centres de données de moyenne et grande taille manquent d’optimisation du système et de surveillance et de gestion à liaison complète, souffrant d’une faible efficacité et d’une consommation d’énergie élevée. Pour résoudre ces problèmes, la solution FusionPower6000 fournit des solutions d’alimentation et de distribution intégrées de niveau MW pour les grands centres de données en intégrant les liaisons pleine puissance du transformateur moyenne tension au chargeur. La solution primée présente trois caractéristiques principales :

  • Simple : avec des composants modulaires remplaçables à chaud, tous préfabriqués en usine, le délai de commercialisation est réduit de 75 %, tandis que la maintenance est simplifiée.
  • Écologique : la convergence à liaison complète permet de réduire l’empreinte physique de plus de 40 %. L’efficacité de la liaison électrique atteint également 97,8 % en mode Super ECO, fournissant de l’énergie de manière respectueuse de l’environnement.
  • Intelligente et fiable : les opérations et la maintenance (O&M) sont facilitées grâce à un système visualisé, à la prédiction des pannes et à la maintenance proactive optimisées par l’intelligence artificielle (IA), à la prédiction de la durée de vie des composants de base, aux paramètres de commutation en ligne et à la reconnaissance du son et de l’image.

En tant que choix privilégié pour les systèmes d’alimentation et de distribution des grands centres de données, la solution FusionPower6000 de Huawei a été largement utilisée dans divers secteurs, notamment l’énergie, les transports, les TIC et les installations de colocation. Par rapport aux solutions traditionnelles, la solution de Huawei a permis au centre de données du CTICC Cloud, une filiale du China Transport Telecommunications & Information Centre (« CTTIC »), d’économiser plus de 40 % d’espace (environ 750 mètres carrés) dans le système d’alimentation et de distribution, de déployer 350 armoires supplémentaires et d’économiser plus de 16 000 mètres de câbles d’alimentation. De plus, le centre de données modulaire préfabriqué ne prend que deux semaines pour être installé sur place. La technologie d’IA permet une maintenance prédictive, renforçant ainsi la sécurité et la fiabilité du système d’alimentation.

À l’avenir, Huawei continuera d’investir dans l’innovation pour créer un système d’alimentation électrique plus dense, efficace, sûr et fiable pour le secteur des centres de données et de conduire l’industrie vers le développement durable.

Photo – https://mma.prnewswire.com/media/1761647/image_5003324_11238039.jpg

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Deputy President David Mabuza: Dialogue with National House of Traditional and Khoi-San Leaders

Opening remarks by Deputy President David Mabuza at the Dialogue with the National House of Traditional and Khoi-San Leaders, Pretoria

Chairperson of the National House of Traditional and Khoi-San Leaders, Nkosikazi Mhlauli: Ah! NoSandi!,

Deputy Chairperson of the National House of Traditional and Khoi-San Leaders, Kgosi Seatlholo: Rapulana!,

Minister of Cooperative Governance and Traditional Affairs,

Amakhosi NaMakhosikazi,

Members of the National House of Traditional and Khoi-San Leaders,

Chairpersons and Deputy Chairpersons of Provincial Houses of Traditional and Khoi-San Leaders,

Cabinet Ministers and Deputy Ministers,

President and Deputy President of CONTRALESA,

Leadership of SALGA,

Leadership of the Municipal Demarcation Board,

Chairperson of the National Khoi-San Commission,

Directors-General,

Distinguished Guests,

When we met in Cape Town at the 6th Opening of the National House of Traditional and Khoi-San Leaders, we agreed that this institution remains an embodiment of our collective history, heritage and a common sense of national identity as the people of this country. The existence of this institution qualifies it to play a critical role in human development and that of traditional communities.

It is for this reason that we are committed to ensuring that the institution of Traditional and Khoi-San Leadership remains relevant in our democracy, and that it proactively responds to the needs, interests and aspirations of rural communities.

We also agreed that this year, the response to the address at the Opening of the National House of Traditional Leaders will take the format of a dialogue as per your humble request.

At this dialogue we expect to find each other as government and the institution of Traditional and Khoi-San Leaders, and that we emerge, having agreed on the course of action to take to ensure that the institution is enabled to fulfill its expected mandate.

We also reiterate how pleased we are at the genuine steps that you have taken towards the transformation of this sector. This is evident in the recent election of the Chairperson and the Deputy Chairperson respectively, who together, are representative of women and youth of our country.

The election of the Chairperson in particular boards well in affirming the ongoing struggle to have women in positions of authority. This election could not have come at a better time than now, when we take stock of strides that we have made under the observation of International Women’s Day this past Tuesday whose theme is, “Gender equality today for a sustainable tomorrow”.

On our part as government, we commit to supporting the leadership of the National House of Traditional and Khoi-San Leaders, by providing an enabling environment for the institution in order to succeed in positively affecting the overall development of our communities and the country, thereby instilling hope for a sustainable and better tomorrow.

This is in line with people’s expectations that their needs and aspirations; and that the realisation of their right to development is not stunted as a result of unnecessary contestations among ourselves and all spheres of government.

To achieve this, we have to work together in partnership and be at one in terms of the programme of action with clear implementation timelines, and encapsulated in a social compact between government and the institution. Unity of purpose, is the cornerstone for any society that aspires for greatness and is determined to prosper.

As we announced during the 6th opening of the National House, and during our engagements with Traditional Leaders in Limpopo Province last week, the President and this government are committed to respecting the role and contribution of Traditional and Khoi-San Leaders in the development agenda of the country. That is why, the President has established an Inter-Ministerial Task Team to deal with the specific issues that you have raised over time with government.

Whereas the issues that the Inter-Ministerial Task Team is entrusted to address may not necessarily be new matters, the very establishment of this Task Team, is an act of assurance by government that we are committed to their resolution.

Such a task requires that we work together in unison and not be distracted by partisan interest above those of people’s development. Our commitment to you, is to move faster in responding to any areas of concern that you may have, which may not be responded to, and may derail our efforts of building thriving communities and a prosperous nation.

The establishment of the Inter-Ministerial Task Team as a coordinating structure to respond to matters that you have raised, is an attempt to ensure that we consolidate our response in a much more integrated manner that will yield tangible and impactful results. We must not shy away from leaving no stone unturned. Having said that, we should be mindful that some issues will not be addressed overnight.

Colleagues,

A lot of what we seek to do, was said during the 6th opening of the National House of Traditional and Khoi-San Leaders. This shall form the basis of our dialogue as well as the proposed solutions to prevailing challenges that we are confronted with as respective leaders and sectors.

We are pleased that today at this dialogue, we have representation from national and local government, the Municipal Demarcation Board and the Commission dealing with Khoi-San matters.

Therefore, this dialogue presents an opportunity for us to place all the issues on the table, and ensure that we come out in agreement on the direction that we must take for the betterment of traditional communities we represent, as well as the prosperity of our country.

Our approach to this dialogue, is structured around the pillars of:

• land ownership, tenure rights and economic development,

• economic development in rural communities,

• social cohesion and nation building,

• policy and legislation on powers and functions of Traditional and Khoi-San Leaders in issues of development, and

• institutional capacity and support to the institution of Traditional and Khoi-San Leadership in rendering services to respective communities.

We have with us today Ministers who form part of the Inter-Ministerial Task Team, and they will provide inputs on these matters in order for us to have a substantive engagement that is solution-oriented. We hope to hear from respective provincial Houses of Traditional and Khoi-San Leaders, perspectives from provinces on where we are, best practices and how to take all our other proposals forward.

We are pleased that much work is taking place within government to address some of the issues that the institution has been raising, and this ensures that we will not be reinventing the wheel on some of these matters.

As we implement all these initiatives, we are mindful of some constraints presented by COVID-19. We appreciate the ongoing guidance and support that the institution of Traditional and Khoi-San Leadership has provided since government first introduced COVID-19 containment measures as well as on the rollout of vaccines against the Coronavirus.

During today’s deliberations, we look forward to hearing further from Traditional and Khoi-San Leaders on the implementation of the COVID-19 Risk Adjusted Strategy, including responding to the update on this Strategy that will be provided by the Minister of Cooperative Governance and Traditional Affairs.

Furthermore, we would like to remind all present today that the month of March is regarded as TB month world-wide, because on the 24th of March each year, the world commemorates those who lost their lives to TB.

It also is a month to mobilise all sectors of society to play an active role in the fight against TB. The burden of this disease remains a leading cause of death and ill-health globally, and particularly in South Africa.

During the 2019 commemoration, we appealed to Traditional and Khoi-San Leaders to be champions of TB messages in their communities and help in finding the missing TB patients. We did this for we understood the important role and influence that Traditional and Khoi-San Leaders have in our country, more specifically within traditional communities.

That same appreciation of your role in the fight against TB equally applies to your role in the fight against COVID-19 and in the advancement of development generally.

No one should die from this curable disease.

This remains our rallying call to this day as we move towards this year’s World TB day commemoration to be hosted in Frances Baard District Municipality in the Northern Cape Province, and our call for concerted policy in action in the fight against TB, HIV/AIDS, STIs, COVID-19 and all other non-communicable diseases.

Let us continue to work together with communities to end TB.

In conclusion, we appeal that we use this time to engage one another in a manner that proposes solutions, and we utilise this dialogue to further communicate to society that to us, collectively, it is the people’s interests that matter the most than our petty contestations, and we dare not fail in moving our country forward.

Thank you.

Source: Government of South Africa

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MEC Lenah Miga responds to the disaster in Deelpan

Cooperative Governance, Human Settlements and Traditional Affairs MEC Lenah Miga has learned with shock about the recurrence of a disaster in Deelpan in Tswaing Local Municipality in the Ngaka Modiri Molema District.

Members from the Provincial Disaster Management Centrewere alerted to the situation in Deelpan which is said to be literally submerged in water in farming communities and l ocal households. Teams are already on the ground to assess the damage caused by the recent flooding.

The department has with assistance from Public Works department, deployed a TBL to assist with the situation by opening furrows to allow water to flow away from homes. However, the deployment of graders has been hampered by the ground which is still very wet, causing the heavy machinery to get stuck in the mud. The department through interaction with members of SAPS has learned of a body that was discovered in the flood waterand investigations are continuing.

“It would really be unfortunate for this person to have fallen victim to the flooding that we are experiencing now. We have been very fortunate that during previous disasters towards the end of last year, that while many lost their property there was no loss of lives”, MEC Miga said.

The department will be working together with the Department of Social Development through SASSA to give emergency humanitarian relief to victims of this disaster.There has been interactions with the municipality to provide temporary shelter for mainly women and children but that assistance was rejected by many fearing for the security of their belongings. The Provincial and Local Disaster Centres are on stand-by to respond and offer assistance to all the people affected by the disaster brought on by the recent torrential rains.

Source: Government of South Africa

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North West Legislature meets with Rural Development and Agriculture on 2022/23 Annual Performance Plan

North West Committee on Agriculture and Rural Development to meet department over their 2022/23 Annual Performance Pan

The North West Provincial Legislature’s Portfolio Committee on Economic Development, Environment, Tourism, Agriculture & Rural Development will hold a meeting with the Department of Rural Development and Agriculture over 2nd draft 2022/23 Annual Performance Plan.

All districts directors have been invited to account for non-spending of conditional grants which impact negatively on service delivery. Currently the department is sitting on 26% expenditure on conditional grants due to project delays, under spending and a lot of rollovers.

Source: Government of South Africa